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Alternative - Low Dose Naltrexone Options
LynW
#1 Posted : Friday, January 28, 2011 6:17:11 PM Quote
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Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Smile

I was asked at our local group meeting if I had come across a treatment called "Low dose Naltrexone" in those with RA. This is something I haven't come across. Personally, I'm not a fan of anything that isn't prescribed by my GP/Consultant. In the past I must have spent thousands of pounds on would be cures, vitamins and alternative therapies all to no avail and so nowadays I stick with what I know actually works!

I have had a look on the internet and found this article. But I wondered whether anyone on here might know more or have first hand experience. I would be interested to hear your thoughts.

Thank you

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

jeanb
#2 Posted : Friday, January 28, 2011 7:45:53 PM Quote
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Joined: 12/3/2009
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Location: Timperley
Haven't heard of this, Lyn BUT I'm surprised you haven't tried Jenni's remedy - the gnat's pee - you know what a miracle cure this is!
Take care xxx
Have just read this article and it is interesting, but obviously hasn't had proper clinical trials yet.
LynW
#3 Posted : Saturday, January 29, 2011 5:35:20 PM Quote
Rank: Advanced Member

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Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Jean

But of course, I use gnats pee regularly, wouldn't be without it! I don't want to be telling everyone about it though because you know how difficult it is to get supplies (I suppose that's because gnats are so small and similarly their output! )

Perhaps someone, somewhere will have heard about naltrexone!

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Julia17
#4 Posted : Saturday, January 29, 2011 7:08:09 PM Quote
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Joined: 2/18/2010
Posts: 1,098
Location: farningham kent
Hi Lyn

Thanks for this post about LDN, I go for my infusion in about two weeks and may see the consultant about my lumpy wrist ! I will have a word with him about this treatment and if he
knows anything I let you know his thoughts. Regarding " my lumps " over the last four weeks they have greatly reduced and in its place my jaw has decided to play up, feels like I have a boil in my ear. You just can t win.

I know you have been having a difficult time Lyn, how have you been ?

Julia xx
FIONA752
#5 Posted : Wednesday, February 02, 2011 7:47:25 PM Quote
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Joined: 12/4/2009
Posts: 312
Hi Lyn,
I just read the article in your link and found it very interesting.
It's time that less damaging drugs were found to treat R.A.
Thanks for posting the link.
Best wishes,
FionaSmile
LynW
#6 Posted : Thursday, February 03, 2011 4:36:09 PM Quote
Rank: Advanced Member

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Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
It does sound promising but doesn't appear to have gone through any clinical trials so could be a long way off. Like you say Fiona less toxic drugs would be wonderful but I suppose the nature of the disease being what it is makes it difficult to avoid the toxicity. Ah well, I'll keep taking the pills, injecting and having the blood drawn. Perhaps one day ... !

Thanks for asking after me Julia. Still going through a rough patch and the leflunomide doesn't seem to be helping. At this rate I'll be asking if I can have my methotrexate back! x

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

sheila_G
#7 Posted : Thursday, May 05, 2011 12:09:11 PM Quote
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Joined: 3/28/2011
Posts: 956
Location: North Preston
Hi Lyn

You have probably posted this somewhere but haven't seen it. Could you tell me why you came off mxt? I am thinking that your reason might help me to with my problems.

Thanks

Love Sheila x
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